FA: Impacts of Quality of Life and Mental Health
This session discusses common mental health challenges faced by adults living with FA and recommendations for advocating for mental health needs with primary care teams.
Resource Library
- All Categories
- Diagnosis
- BRCA2
- DNA
- Fertility
- Haploidentical
- Maladie de Fanconi
- Private Health Insurance
- Vaccine
- Breast Cancer
- DNA Repair
- Finances & Insurance
- Head and neck
- Medicaid
- Psychological
- Stem Cell Donor
- Vulvar Cancer
- Transplant
- BRIP1
- Donor
- Financial Support
- Healthcare
- Medicare
- Psychosocial Support
- Stem cells
- Waivers
- Cancer
- Cancer Risk
- Endocrine
- FMLA
- Health Insurance
- Mental Health
- Recursos en español
- Steroids
- Wellbeing
- Finances
- Caregiver Resources
- Endocrinologist
- Food
- Help
- Monitoring
- Research
- Wellness
- Case management
- Endocrinology
- Français
- Hematology
- Newly diagnosed
- Resilience
- Success Rates
- What is FA
- Caregivers
- Chemotherapy
- Esophagus
- Fundraising
- Hematopoietic
- Nutrition
- Resources
- Sun
- Clinical Trials
- Español
- Gastrointestinal
- hereditary
- Oral Cancer
- Science
- Sunscreen
- Acute Myeloid Leukemia
- Comprehensive Care Center
- FA Basics
- Gene
- HLA Matching
- PALB2
- Screening
- Support
- Adults
- Coping
- Family
- HNSCC
- Pathway
- Siblings
- Support group
- Allogeneic
- Counseling
- Family Planning
- Gene Therapy
- Hormones
- Skin
- Symptoms
- Anemia de Fanconi
- Covid-19
- FANC-A
- Genetic
- Infertility
- Peer Support
- Skin Cancer
- Transplant Center
- Anogenital
- FANCJ
- Inheritance
- PGD
- Social Security Disability Insurance
- Transplant Resources
- Bone Marrow
- Dermatology
- FANCN
- Growth
- Insurance
- PGT
- Squamous Cell Carcinoma
- Trauma
- Bone marrow failure
- Diet
- FANCO
- Growth Curve
- IVF
- Post transplant
- SSDI
- Treatment
- BRCA1
- Disability
- FARF
- GvHD
- Lesions
- SSI
- Tumor
Caregivers: We See You, We Hear You, We’re Here for You
Allison Breininger (The Negative Space), Jessica Kim (Ianacare), and Kyle Woody (Jack's Caregiver Coalition) speak about resources for caregivers.
Toxic Positivity: Why It’s Okay to Not Be Okay
Megan Voss, DNP, RN, Integrative Therapy Program Director, University of Minnesota speaks about toxic positivity and consequences
Taking Charge of Your Survivorship (subtitulado ES)
This talk on survivorship addresses enhancing both physical and mental wellbeing through integrative approaches, connection, and mental health support.
Cultivating Wellbeing and Resilience
Mental and emotional health plays a huge role in our wellbeing. Hear about ways to cultivate wellbeing from Dr. Megan Voss.
Living & Coping with FA
Dr. Naomi Joffe, PhD, speaks about some of the normative coping challenges that families face during a rare disease diagnosis, treatment, and beyond