Financial and Healthcare Resources
Information about how to handle healthcare costs and how to navigate options.
Resource Library
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Caregivers: We See You, We Hear You, We’re Here for You
Allison Breininger (The Negative Space), Jessica Kim (Ianacare), and Kyle Woody (Jack's Caregiver Coalition) speak about resources for caregivers.
Taking Charge of Your Survivorship (subtitulado ES)
This talk on survivorship addresses enhancing both physical and mental wellbeing through integrative approaches, connection, and mental health support.
Social Work for Patients Undergoing Transplant
Hear about the role of social work support for those undergoing a bone marrow transplant
Cultivating Wellbeing and Resilience
Mental and emotional health plays a huge role in our wellbeing. Hear about ways to cultivate wellbeing from Dr. Megan Voss.
The Path to a Cure
There are many steps involved to get better treatments and curative options for those with FA. This info sheet visually shows the path to a cure.