Transitioning to Adult Care
As rare disease patients approach adulthood, they face the transition from parent-supervised pediatric care to more independent adult models & taking ownership of their own care
Resource Library
- All Categories
- Acute Myeloid Leukemia
- Adults
- Allogeneic
- Anemia de Fanconi
- Anogenital
- Bone Marrow
- Bone marrow failure
- BRCA1
- BRCA2
- Breast Cancer
- BRIP1
- Cancer
- Cancer Risk
- Caregiver Resources
- Caregivers
- Case management
- Chemotherapy
- Clinical Trials
- Comprehensive Care Center
- Coping
- Counseling
- Covid-19
- Dermatology
- Diagnosis
- Diet
- Disability
- DNA
- DNA Repair
- Donor
- Endocrine
- Endocrinologist
- Endocrinology
- Esophagus
- Español
- FA Basics
- Family
- Family Planning
- FANC-A
- FANCJ
- FANCN
- FANCO
- FARF
- Fertility
- Finances
- Finances & Insurance
- Financial Support
- FMLA
- Food
- Français
- Fundraising
- Gastrointestinal
- Gene
- Genetic
- Gene Therapy
- Growth
- Growth Curve
- GvHD
- Haploidentical
- Head and neck
- Health Insurance
- Healthcare
- Help
- Hematology
- Hematopoietic
- hereditary
- HLA Matching
- HNSCC
- Hormones
- Infertility
- Inheritance
- Insurance
- IVF
- Lesions
- Maladie de Fanconi
- Medicaid
- Medicare
- Mental Health
- Monitoring
- Newly diagnosed
- Nutrition
- Oral Cancer
- PALB2
- Pathway
- Peer Support
- PGD
- PGT
- Post transplant
- Private Health Insurance
- Psychological
- Psychosocial Support
- Recursos en español
- Research
- Resilience
- Resources
- Science
- Screening
- Siblings
- Skin
- Skin Cancer
- Social Security Disability Insurance
- Squamous Cell Carcinoma
- SSDI
- SSI
- Stem Cell Donor
- Stem cells
- Steroids
- Success Rates
- Sun
- Sunscreen
- Support
- Support group
- Symptoms
- Transplant
- Transplant Center
- Transplant Resources
- Trauma
- Treatment
- Tumor
- Vaccine
- Vulvar Cancer
- Waivers
- Wellbeing
- Wellness
- What is FA
Understanding Options for Health & Diasbility Insurance
Learn about options for insurance and disability from Monica Fawzy Bryant, COO, Triage Cancer.