Mental Health

Living with Fanconi anemia brings emotional, social, and psychological challenges – not just physical ones. At FCF, we aim to support the mental well-being of the FA community through research, professional services, peer support, and trusted resources. Explore the sections below to find help, connection, and understanding.

Resource

Download the Mental Health and Wellbeing Toolkit

Living with Fanconi anemia, or caring for someone with FA, brings ongoing uncertainty, complex medical experiences and emotional strain. These experiences affect more than physical health. They can also shape mental health, relationships, daily routines and a person’s sense of safety and connection.

The Mental Health and Wellbeing Toolkit is a resource offering practical tools and trusted guidance for people living with FA and those who care for them.

Download

You're Not Alone

One-On-One Coaching

We offer one-on-one coaching scholarships for individuals age 16 and up, including those navigating grief or caregiving roles, through experienced coaches Lori Krause and Allison Breininger. These sessions create safe, judgment-free space to process emotions and find coping tools with someone who understands.

Connect With Our Team

Counseling

Give An Hour

FCF partners with Give An Hour, a nonprofit that connects individuals and families with mental health professionals. This free and confidential service provides support for the FA community.

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Mental Health Research

What Does the Research Say?

Research by Dr. Kathleen Bogart and Megan Voss explores the psychological and social impacts of FA. Their work seeks to uncover ways to enhance mental health support and care for people affected by FA.

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