Resource Library

Fanconi Anemia 101: For Families Affected by FA (2023)

Just diagnosed with Fanconi anemia? Start here.Dr. Parinda Mehta from Cincinnati Children's Hospital Medical Center delivers an updated "FA 101" to families at the 2023 FA Family Retreat.ESPAÑOL:¿Recientemente diagnosticado con...
View >

How to Talk to Children About Fanconi anemia (subtitulado ES)

Presenters help equip caregivers with the tools to engage their children in conversation about a Fanconi anemia diagnosis
View >

What is FA?

Fanconi anemia is a rare disease passed down through families (inherited) that mainly affects the bone marrow. Ray Monnat gives an overview of symptoms and treatments.
View >

The Path to a Cure

There are many steps involved to get better treatments and curative options for those with FA. This info sheet visually shows the path to a cure.
Download >

Stages of Life with FA

While each person's experience with FA varies, there are a few key stages most go through.
Download >