FA: Impacts of Quality of Life and Mental Health
This session discusses common mental health challenges faced by adults living with FA and recommendations for advocating for mental health needs with primary care teams.
Resource Library
- All Categories
- Acute Myeloid Leukemia
- Adults
- Allogeneic
- Anemia de Fanconi
- Anogenital
- Bone Marrow
- Bone marrow failure
- BRCA1
- BRCA2
- Breast Cancer
- BRIP1
- Cancer
- Cancer Risk
- Caregiver Resources
- Caregivers
- Case management
- Chemotherapy
- Clinical Trials
- Comprehensive Care Center
- Coping
- Counseling
- Covid-19
- Dermatology
- Diagnosis
- Diet
- Disability
- DNA
- DNA Repair
- Donor
- Endocrine
- Endocrinologist
- Endocrinology
- Esophagus
- Español
- FA Basics
- Family
- Family Planning
- FANC-A
- FANCJ
- FANCN
- FANCO
- FARF
- Fertility
- Finances
- Finances & Insurance
- Financial Support
- FMLA
- Food
- Français
- Fundraising
- Gastrointestinal
- Gene
- Genetic
- Gene Therapy
- Growth
- Growth Curve
- GvHD
- Haploidentical
- Head and neck
- Health Insurance
- Healthcare
- Help
- Hematology
- Hematopoietic
- hereditary
- HLA Matching
- HNSCC
- Hormones
- Infertility
- Inheritance
- Insurance
- IVF
- Lesions
- Maladie de Fanconi
- Medicaid
- Medicare
- Mental Health
- Monitoring
- Newly diagnosed
- Nutrition
- Oral Cancer
- PALB2
- Pathway
- Peer Support
- PGD
- PGT
- Post transplant
- Private Health Insurance
- Psychological
- Psychosocial Support
- Recursos en español
- Research
- Resilience
- Resources
- Science
- Screening
- Siblings
- Skin
- Skin Cancer
- Social Security Disability Insurance
- Squamous Cell Carcinoma
- SSDI
- SSI
- Stem Cell Donor
- Stem cells
- Steroids
- Success Rates
- Sun
- Sunscreen
- Support
- Support group
- Symptoms
- Transplant
- Transplant Center
- Transplant Resources
- Trauma
- Treatment
- Tumor
- Vaccine
- Vulvar Cancer
- Waivers
- Wellbeing
- Wellness
- What is FA
Toxic Positivity: Why It’s Okay to Not Be Okay
Megan Voss, DNP, RN, Integrative Therapy Program Director, University of Minnesota speaks about toxic positivity and consequences
Psychosocial Impacts of Living with a Rare Disease
Kathleen Bogart, PhD, Director of Disability & Social Interaction Lab, Oregon State University Presented in October 2020 as part of the Meeting for Adults with Fanconi Anemia
What is FA?
Fanconi anemia is a rare disease passed down through families (inherited) that mainly affects the bone marrow. Ray Monnat gives an overview of symptoms and treatments.
Caregivers: We See You
Allison Breininger and Donna Behlke, both caregivers to a loved one with FA, share their experiences and provide tips for other caregivers.
Social Work for Patients Undergoing Transplant
Hear about the role of social work support for those undergoing a bone marrow transplant