FA: Impacts of Quality of Life and Mental Health
This session discusses common mental health challenges faced by adults living with FA and recommendations for advocating for mental health needs with primary care teams.
Resource Library
- All Categories
- Adults
- Coping
- Family
- HNSCC
- Pathway
- Siblings
- Support group
- Allogeneic
- Counseling
- Family Planning
- Gene Therapy
- Hormones
- Skin
- Symptoms
- Anemia de Fanconi
- Covid-19
- FANC-A
- Genetic
- Infertility
- Peer Support
- Skin Cancer
- Transplant Center
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- FANCJ
- Inheritance
- PGD
- Social Security Disability Insurance
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- Bone Marrow
- Dermatology
- FANCN
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- Trauma
- Bone marrow failure
- Diet
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- Growth Curve
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- Post transplant
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- Disability
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- GvHD
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- Healthcare
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- Mental Health
- Recursos en español
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- Endocrinologist
- Food
- Help
- Monitoring
- Research
- Wellness
- Case management
- Endocrinology
- Français
- Hematology
- Newly diagnosed
- Resilience
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- What is FA
- Caregivers
- Chemotherapy
- Esophagus
- Fundraising
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- Nutrition
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- Sun
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- Español
- Gastrointestinal
- hereditary
- Oral Cancer
- Science
- Sunscreen
- Acute Myeloid Leukemia
- Comprehensive Care Center
- FA Basics
- Gene
- HLA Matching
- PALB2
- Screening
- Support
Toxic Positivity: Why It’s Okay to Not Be Okay
Megan Voss, DNP, RN, Integrative Therapy Program Director, University of Minnesota speaks about toxic positivity and consequences
Psychosocial Impacts of Living with a Rare Disease
Kathleen Bogart, PhD, Director of Disability & Social Interaction Lab, Oregon State University Presented in October 2020 as part of the Meeting for Adults with Fanconi Anemia
What is FA?
Fanconi anemia is a rare disease passed down through families (inherited) that mainly affects the bone marrow. Ray Monnat gives an overview of symptoms and treatments.
Caregivers: We See You
Allison Breininger and Donna Behlke, both caregivers to a loved one with FA, share their experiences and provide tips for other caregivers.
Social Work for Patients Undergoing Transplant
Hear about the role of social work support for those undergoing a bone marrow transplant