“Power to U”: New campaign to manage the increased risk for oral cancer
We focus on early detection by providing all different kinds of support (including clinicians and individuals with FA)
Resource Library
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Improving Nutrition and Understanding Nutrient-sensing in Persons with Fanconi anemia
Lindsey Romick explores the findings of a recent clinical research study tracing nutrient uptake and use in persons with FA.
The NIH Center Comprehensive Program for Surveillance of Squamous Cell Carcinoma in Patients with FA
Neelam Giri and Sharon Savage cover a brief description of the protocol to prospectively evaluate and follow patients with FA at high risk of SCC with screening at regular intervals.
Partnership Between Researchers, Docs, Adults (subtitulado ES)
How can adults with FA and researchers partner to bring better treatments faster?
The Path to a Cure
There are many steps involved to get better treatments and curative options for those with FA. This info sheet visually shows the path to a cure.