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Your Story Matters

At FCF, we believe in the power of stories to connect, inspire, and inform. Whether you or a loved one lives/lived with Fanconi anemia, your experience is an important part of our shared community. We’d love to hear about it. Use our easy-to-follow form to submit your written story or video story.

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The Latest

News & Events

Ryan’s Story: The Impact of Research, Support, and Community

When Ryan was diagnosed with Fanconi anemia (FA) at 18 months old, it was devastating. There were so many unknowns, and trying to gather information online was both frustrating and scary. When we found the Fanconi Cancer Foundation (FCF) and...

Living with Faith and Possibility

For our family, living with FA means living with faith. We see Liam as a normal, healthy child who continues to grow and surprise us. At the same time, we know there are real challenges.

Speaking Up for Rare Disease Communities

Advocacy efforts play an essential role in building stronger systems of care for rare diseases. By elevating the experiences of families and engaging policymakers, organizations such as the Ivan & Joan Foundation are helping move rare disease awareness and care forward in their communities.