Find Your FAmily

Facing FA Together

FA Family Retreat

Family fun awaits at the FA Family Retreat, hosted at a summer camp in California. Immerse yourself in presentations by leading FA researchers and investigators spearheading clinical care and studies. Connect face-to-face with other individuals and families affected by FA through live support groups. Discover genuine support and camaraderie at FCF’s FA Family retreat, offering invaluable connections precisely when and where they’re needed most. We can’t wait to welcome you.

Events & Gatherings

Retreat for Adults with FA

The Retreat for Adults with FA features presentations by leading researchers and physicians, support groups for coping, voluntary participation in FA research projects, and a chance to connect with other affected people with FA. FCF strives to combat the isolation that often accompanies FA, fostering support, education, and empowerment through yearly gatherings. Held in tandem with our Scientific Symposium, attendees have the opportunity to connect with the world’s leading FA clinicians and researchers.

Event Calendar

Our events offer presentations by top researchers, support sessions, voluntary participation in research projects, and connections with others affected by FA. Check our Events Calendar for upcoming opportunities to connect, learn, and share experiences.