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2023 Research Updates

The Latest on FA Research Research is the answer to one day making FA a treatable, manageable disease. On this page you’ll find the latest updates on FARF-funded research and activities. Each quarter, we’ll update this list with our newly funded grants, projects and initiatives, events, and other research milestones or opportunities. These advancements are made possible thanks to our...

Introducing the Fanconi Cancer Foundation: A New Era in FA Research & Impact

In 1989, Lynn and David Frohnmayer founded the Fanconi Anemia Research Fund (FARF), determined and desperate to find a cure for their three daughters diagnosed with Fanconi anemia (FA). Since then, their vision has grown into a vibrant community of FA families, researchers, clinicians, donors, fundraisers, staff, and volunteers, all dedicated to improving outcomes for people with FA.

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The Genetic Revolution for Fanconi Anemia Begins Now 

World-Renown Experts Take On the Root of the Problem The long-awaited genetic revolution for rare genetic diseases has arrived and with it, the potential to cure diseases like FA within our lifetimes using state-of-the-art gene therapy (gene replacement) and gene...

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From Diagnosis to Advocacy: My Story with Fanconi Anemia

My name is Blue Mohr and I’m a 27-year-old living with Fanconi anemia (FA). I’m from Austin, Texas, though I am currently living in Washington, D.C. where I’m pursuing a Master of Public Health degree from the George Washington University with concentrations in epidemiology, cancer, and public health communication and marketing. 

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Finding Hope at FA Family Camp

When our son Blake was diagnosed with Fanconi anemia in 2013, our world instantly changed. He was two years old and we didn’t have many medical concerns. Never in a million years would we have predicted all that Blake and our family would go through.

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Celebrating 18 Years of the KATA Foundation

There’s nothing quite like the fierce determination of parents who have a child affected by Fanconi anemia. Our founders had three daughters with FA and to this day, the majority of our funding comes from FA family communities. One such family community from Colorado has been working on this cause for nearly 20 years and has raised an outstanding $3.1 million for FA research.

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How to Declare May as Fanconi Anemia Month in Your State

What is a proclamation? An official announcement, in this case by a government official, to the public about an important issue, event, or action. Why is it important? Raising awareness at the government level and among the public may lead...

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