What We Do

We Improve Lives Through Research, Advocacy, Education, and Support.

The Path Starts Here

Research

Research is the first step towards finding better treatments, and ultimately a cure, for FA and its associated cancers. By investing in research and people, the Fanconi Cancer Foundation fosters the innovation necessary to enhance clinical care. We are committed to preventing, detecting, and treating cancer in individuals with FA, recognizing that understanding FA-associated cancers can inform cancer treatment beyond our immediate community.

We’re Here For You

Support & Education

If you or someone you love is facing a FA diagnosis, you are not alone. FA is a complex diagnosis, one that can affect all areas of the body and life. We provide individuals and their families, along with their medical care teams, with education, connection, and resources to help them navigate and cope with an FA diagnosis.

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Our organization thrives primarily on the generous support of fundraisers and donations

Science & Hope For A Cure

Fundraising

Fundraising is the bridge between science and hope for anyone facing FA. Through donor support, the Fanconi Cancer Foundation gives researchers the necessary resources to make groundbreaking discoveries, develop innovative therapies, and pioneer life-altering studies to help transform the lives of those impacted by FA and cancer as a whole.

Our FAmily Spans the Globe

Events

From galas to marathons, the FA community comes together during events throughout the year all over the world. Whether raising funds in support of our mission to find effective treatments and a cure for FA, bringing the experts together, or gathering FA families together for unwavering support, find out what’s next on our FA events calendar.

Researchers standing together

The Latest

News & Events

Breaking Ground in Cancer Research: Introducing the Fanconi Cancer Foundation-AACR NextGen Grant

That's why we're thrilled to announce the launch of the Fanconi Cancer Foundation-AACR NextGen Grant for Transformative Cancer Research, a flagship funding opportunity in partnership with the American Association for Cancer Research (AACR).

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Introducing the Fanconi Cancer Foundation: A New Era in FA Research & Impact

In 1989, Lynn and David Frohnmayer founded the Fanconi Anemia Research Fund (FARF), determined and desperate to find a cure for their three daughters diagnosed with Fanconi anemia (FA). Since then, their vision has grown into a vibrant community of FA families, researchers, clinicians, donors, fundraisers, staff, and volunteers, all dedicated to improving outcomes for people with FA.

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The Genetic Revolution for Fanconi Anemia Begins Now 

World-Renown Experts Take On the Root of the Problem The long-awaited genetic revolution for rare genetic diseases has arrived and with it, the potential to cure diseases like FA within our lifetimes using state-of-the-art gene therapy (gene replacement) and gene...

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