What We Do

We Improve Lives Through Research, Advocacy, Education, and Support.

The Path Starts Here


Research is the first step towards finding better treatments, and ultimately a cure, for FA and its associated cancers. By investing in research and people, the Fanconi Cancer Foundation fosters the innovation necessary to enhance clinical care. We are committed to preventing, detecting, and treating cancer in individuals with FA, recognizing that understanding FA-associated cancers can inform cancer treatment beyond our immediate community.

We’re Here For You

Support & Education

If you or someone you love is facing a FA diagnosis, you are not alone. FA is a complex diagnosis, one that can affect all areas of the body and life. We provide individuals and their families, along with their medical care teams, with education, connection, and resources to help them navigate and cope with an FA diagnosis.

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Our organization thrives primarily on the generous support of fundraisers and donations

Science & Hope For A Cure


Fundraising is the bridge between science and hope for anyone facing FA. Through donor support, the Fanconi Cancer Foundation gives researchers the necessary resources to make groundbreaking discoveries, develop innovative therapies, and pioneer life-altering studies to help transform the lives of those impacted by FA and cancer as a whole.

Our FAmily Spans the Globe


From galas to marathons, the FA community comes together during events throughout the year all over the world. Whether raising funds in support of our mission to find effective treatments and a cure for FA, bringing the experts together, or gathering FA families together for unwavering support, find out what’s next on our FA events calendar.

Researchers standing together

The Latest

News & Events

FA Europe Meeting Unites Physicians, Researchers and Advocates in Paris

On May 24th, 2024, the FA Europe Network hosted its inaugural pan-European scientific meeting at the historic Saint-Louis Hospital in Paris, marking a significant milestone in international collaboration for Fanconi anemia (FA).

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Behind the Research: Andrew Deans

My lab’s vision for the next five years is to apply what we have learned to develop molecules that can alter FA protein behavior. These could be used to treat cancer or alter gene editing outcomes.

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Inspiration Through Education: Omar’s Journey with Fanconi Anemia

In a world where every day presents new challenges, my 11-year-old son, Omar, from Oman, stands out for his resilience and eagerness to raise awareness about Fanconi anemia. Diagnosed at just five years old, we truly believe his journey is a testament to hope and the strength of the human spirit.

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Join us at the upcoming #FCFSymposium and FA Adult Retreat September 19- 22 in Charlotte, North Carolina.
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