What We Do

We Improve Lives Through Research, Advocacy, Education, and Support.

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We are the world leaders pioneering the advancement of FA research in pursuit of better treatments, and ultimately a cure, for FA and FA-associated cancers. 

Research is the key to one day making FA a manageable condition. We’ve come a long way and individuals with FA are living longer. But our mission is not complete. Through research, advocacy, support and education,  we continue to take major steps forward in addressing our biggest problem yet: cancer.

The Path Starts Here

Research

Research is the first step towards finding better treatments, and ultimately a cure, for FA and its associated cancers. By investing in research and people, the Fanconi Cancer Foundation fosters the innovation necessary to enhance clinical care. We are committed to preventing, detecting, and treating cancer in individuals with FA, recognizing that understanding FA-associated cancers can inform cancer treatment beyond our immediate community.

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We’re Here For You

Support & Education

If you or someone you love is facing a FA diagnosis, you are not alone. FA is a complex diagnosis, one that can affect all areas of the body and life. We provide individuals and their families, along with their medical care teams, with education, connection, and resources to help them navigate and cope with an FA diagnosis.

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Our organization thrives primarily on the generous support of fundraisers and donations

Science & Hope For A Cure

Fundraising

Fundraising is the bridge between science and hope for anyone facing FA. Through donor support, the Fanconi Cancer Foundation gives researchers the necessary resources to make groundbreaking discoveries, develop innovative therapies, and pioneer life-altering studies to help transform the lives of those impacted by FA and cancer as a whole.

Fundraising

Our FAmily Spans the Globe

Events

From galas to marathons, the FA community comes together during events throughout the year all over the world. Whether raising funds in support of our mission to find effective treatments and a cure for FA, bringing the experts together, or gathering FA families together for unwavering support, find out what’s next on our FA events calendar.

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The Latest

News & Events

Supporting Mental Health and Wellbeing for Individuals with FA and Caregivers: Key Insights and Recommendations

At the Fanconi Cancer Foundation (FCF), we understand the critical importance of addressing mental health alongside physical health for individuals with Fanconi anemia (FA) and their family caregivers. Recent research on the mental health challenges faced by adults with FA...

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Recap of the 36th Annual Fanconi Anemia Scientific Symposium and Adult Retreat

The 36th Annual Fanconi Anemia (FA) Scientific Symposium and Adult Retreat took place in Charlotte, North Carolina in September 2024, and brought together researchers, clinicians, advocates, individuals with FA and community members from across the globe. This year’s theme, “It Takes...

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FA Adult Retreat & Scientific Symposium: A Homecoming for Patients, Families and Researchers

Hello, this is FA Adult Council member Lexi Marshall with a recap of the FA Adult Retreat in Charlotte, North Carolina. To back up, I attended my first FA Adult Retreat and Scientific Symposium as a newly diagnosed person with...

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Eugene, OR 97401

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We are proud to have a 4-star rating from Charity Navigator.

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