FA: Impacts of Quality of Life and Mental Health
This session discusses common mental health challenges faced by adults living with FA and recommendations for advocating for mental health needs with primary care teams.
Resource Library
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- What is FA
The NIH Center Comprehensive Program for Surveillance of Squamous Cell Carcinoma in Patients with FA
Neelam Giri and Sharon Savage cover a brief description of the protocol to prospectively evaluate and follow patients with FA at high risk of SCC with screening at regular intervals.
Gynecologic Cancer & Fanconi Anemia: What You Need to Know
Dr. Katy Pennington discusses gynecologic cancer in Fanconi anemia
Neuroinflammation Issues in Adults with Fanconi Anemia
Neuroinflammation Issues in Adults with FA with Stella Davies, MD, Fanconi Anemia Comprehensive Care Program, Cincinnati Children’s Hospital
Transitioning to Adult Care
As rare disease patients approach adulthood, they face the transition from parent-supervised pediatric care to more independent adult models & taking ownership of their own care
Quercetin Study for Adults with FA (subtitulado ES)
What is quercetin and how is it used in the context of FA?