Resource Library

FA & FARF Fact Sheet

What you need to know about FA and FARF on one informative sheet
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Transitioning to Adult Care

As rare disease patients approach adulthood, they face the transition from parent-supervised pediatric care to more independent adult models & taking ownership of their own care
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What is FA?

Fanconi anemia is a rare disease passed down through families (inherited) that mainly affects the bone marrow. Ray Monnat gives an overview of symptoms and treatments.
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Understanding Options for Health & Diasbility Insurance

Learn about options for insurance and disability from Monica Fawzy Bryant, COO, Triage Cancer.
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Caregivers: We See You

Allison Breininger and Donna Behlke, both caregivers to a loved one with FA, share their experiences and provide tips for other caregivers.
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Social Work for Patients Undergoing Transplant

Hear about the role of social work support for those undergoing a bone marrow transplant
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