FA & FARF Fact Sheet
What you need to know about FA and FARF on one informative sheet
Resource Library
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- Maladie de Fanconi
- Private Health Insurance
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- Finances & Insurance
- Head and neck
- Medicaid
- Psychological
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- Vulvar Cancer
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- Financial Support
- Healthcare
- Medicare
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- Health Insurance
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- Recursos en español
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- Finances
- Caregiver Resources
- Endocrinologist
- Food
- Help
- Monitoring
- Research
- Wellness
Transitioning to Adult Care
As rare disease patients approach adulthood, they face the transition from parent-supervised pediatric care to more independent adult models & taking ownership of their own care
What is FA?
Fanconi anemia is a rare disease passed down through families (inherited) that mainly affects the bone marrow. Ray Monnat gives an overview of symptoms and treatments.
Understanding Options for Health & Diasbility Insurance
Learn about options for insurance and disability from Monica Fawzy Bryant, COO, Triage Cancer.
Caregivers: We See You
Allison Breininger and Donna Behlke, both caregivers to a loved one with FA, share their experiences and provide tips for other caregivers.
Social Work for Patients Undergoing Transplant
Hear about the role of social work support for those undergoing a bone marrow transplant