Transitioning to Adult Care
As rare disease patients approach adulthood, they face the transition from parent-supervised pediatric care to more independent adult models & taking ownership of their own care
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- What is FA
What is FA?
Fanconi anemia is a rare disease passed down through families (inherited) that mainly affects the bone marrow. Ray Monnat gives an overview of symptoms and treatments.
Understanding Options for Health & Diasbility Insurance
Learn about options for insurance and disability from Monica Fawzy Bryant, COO, Triage Cancer.
Caregivers: We See You
Allison Breininger and Donna Behlke, both caregivers to a loved one with FA, share their experiences and provide tips for other caregivers.
Social Work for Patients Undergoing Transplant
Hear about the role of social work support for those undergoing a bone marrow transplant
FA Diagnosis and Treatment
What steps should you take once diagnosed with FA? How do you ensure care over the long-term?