Resource Library

The NIH Center Comprehensive Program for Surveillance of Squamous Cell Carcinoma in Patients with FA

Neelam Giri and Sharon Savage cover a brief description of the protocol to prospectively evaluate and follow patients with FA at high risk of SCC with screening at regular intervals.
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FARF Clinical Programs: Virtual Tumor Board & FA Registry

FARF's Clinical Science Program Manager, Andrea Ronan, gives an overview of the FARF clinical programs, including the Fanconi Anemia Registry and Virtual Tumor Board.
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Eltrombopag Clinical Trial Update 2022

Dr. Andre Larochelle gives an update on the Eltrombopag clinical trial
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How to Talk to Children About Fanconi anemia (subtitulado ES)

Presenters help equip caregivers with the tools to engage their children in conversation about a Fanconi anemia diagnosis
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Stanford FA Program and Clinical Trials (subtitulado ES)

Doctors from Stanford share about their FA program and clinical trials available to FA patients.
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Información completa sobre la AF

Ficha informativa y visual sobre la anemia de Fanconi
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Join us at the upcoming #FCFSymposium and FA Adult Retreat September 19- 22 in Charlotte, North Carolina.
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