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Toxic Positivity: Why It’s Okay to Not Be Okay
Megan Voss, DNP, RN, Integrative Therapy Program Director, University of Minnesota speaks about toxic positivity and consequences
Psychosocial Impacts of Living with a Rare Disease
Kathleen Bogart, PhD, Director of Disability & Social Interaction Lab, Oregon State University Presented in October 2020 as part of the Meeting for Adults with Fanconi Anemia
How to Talk to Children About Fanconi anemia (subtitulado ES)
Presenters help equip caregivers with the tools to engage their children in conversation about a Fanconi anemia diagnosis
Taking Charge of Your Survivorship (subtitulado ES)
This talk on survivorship addresses enhancing both physical and mental wellbeing through integrative approaches, connection, and mental health support.
Social Work for Patients Undergoing Transplant
Hear about the role of social work support for those undergoing a bone marrow transplant