Resource Library

Toxic Positivity: Why It’s Okay to Not Be Okay

Megan Voss, DNP, RN, Integrative Therapy Program Director, University of Minnesota speaks about toxic positivity and consequences
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Psychosocial Impacts of Living with a Rare Disease

Kathleen Bogart, PhD, Director of Disability & Social Interaction Lab, Oregon State University Presented in October 2020 as part of the Meeting for Adults with Fanconi Anemia
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How to Talk to Children About Fanconi anemia (subtitulado ES)

Presenters help equip caregivers with the tools to engage their children in conversation about a Fanconi anemia diagnosis
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Taking Charge of Your Survivorship (subtitulado ES)

This talk on survivorship addresses enhancing both physical and mental wellbeing through integrative approaches, connection, and mental health support.
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Social Work for Patients Undergoing Transplant

Hear about the role of social work support for those undergoing a bone marrow transplant
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Cultivating Wellbeing and Resilience

Mental and emotional health plays a huge role in our wellbeing. Hear about ways to cultivate wellbeing from Dr. Megan Voss.
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