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- What is FA
FA: Impacts of Quality of Life and Mental Health
This session discusses common mental health challenges faced by adults living with FA and recommendations for advocating for mental health needs with primary care teams.
Toxic Positivity: Why It’s Okay to Not Be Okay
Megan Voss, DNP, RN, Integrative Therapy Program Director, University of Minnesota speaks about toxic positivity and consequences
Psychosocial Impacts of Living with a Rare Disease
Kathleen Bogart, PhD, Director of Disability & Social Interaction Lab, Oregon State University Presented in October 2020 as part of the Meeting for Adults with Fanconi Anemia
Cultivating Wellbeing and Resilience
Mental and emotional health plays a huge role in our wellbeing. Hear about ways to cultivate wellbeing from Dr. Megan Voss.
Living & Coping with FA
Dr. Naomi Joffe, PhD, speaks about some of the normative coping challenges that families face during a rare disease diagnosis, treatment, and beyond