Resource Library

Financial and Healthcare Resources

Information about how to handle healthcare costs and how to navigate options.
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Transitioning to Adult Care

As rare disease patients approach adulthood, they face the transition from parent-supervised pediatric care to more independent adult models & taking ownership of their own care
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Understanding Options for Health & Diasbility Insurance

Learn about options for insurance and disability from Monica Fawzy Bryant, COO, Triage Cancer.
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Join us at the upcoming #FCFSymposium and FA Adult Retreat September 19- 22 in Charlotte, North Carolina.
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