Resource Library

Fanconi Anemia Neurological Syndrome: What We Know So Far (2023)

Video

Dr. Eunike Velleuer describes a very rare manifestation of Fanconi anemia, known as Fanconi Anemia-Associated Neurological Syndrome (FANS). FARF is working with the research community to better understand FANS and...
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Fanconi Anemia 101: For Families Affected by FA (2023)

Video

Just diagnosed with Fanconi anemia? Start here.Dr. Parinda Mehta from Cincinnati Children's Hospital Medical Center delivers an updated "FA 101" to families at the 2023 FA Family Retreat.ESPAÑOL:¿Recientemente diagnosticado con...
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FA: Impacts of Quality of Life and Mental Health

Video

This session discusses common mental health challenges faced by adults living with FA and recommendations for advocating for mental health needs with primary care teams.
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Fertility for Males with Fanconi Anemia

Video

Anne Casson is a fertility nurse at Memorial Sloan Kettering, an FA Center of Excellence. In this video she speaks about fertility in males with Fanconi anemia. SUBTITULOS ES
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“Power to U”: New campaign to manage the increased risk for oral cancer

Video

We focus on early detection by providing all different kinds of support (including clinicians and individuals with FA)
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The Future of FA Cancer Research: The Fanconi Anemia Cancer Consortium

Video

FARF Scientific Director, Isis Sroka, talks about the newly developed Fanconi Anemia Cancer Consortium (FACC).
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