Improving Nutrition and Understanding Nutrient-sensing in Persons with Fanconi anemia
Lindsey Romick explores the findings of a recent clinical research study tracing nutrient uptake and use in persons with FA.
Resource Library
- All Categories
- Acute Myeloid Leukemia
- Adults
- Allogeneic
- Anemia de Fanconi
- Anogenital
- Bone Marrow
- Bone marrow failure
- BRCA1
- BRCA2
- Breast Cancer
- BRIP1
- Cancer
- Cancer Risk
- Caregiver Resources
- Caregivers
- Case management
- Chemotherapy
- Clinical Trials
- Comprehensive Care Center
- Coping
- Counseling
- Covid-19
- Dermatology
- Diagnosis
- Diet
- Disability
- DNA
- DNA Repair
- Donor
- Endocrine
- Endocrinologist
- Endocrinology
- Esophagus
- Español
- FA Basics
- Family
- Family Planning
- FANC-A
- FANCJ
- FANCN
- FANCO
- FARF
- Fertility
- Finances
- Finances & Insurance
- Financial Support
- FMLA
- Food
- Français
- Fundraising
- Gastrointestinal
- Gene
- Genetic
- Gene Therapy
- Growth
- Growth Curve
- GvHD
- Haploidentical
- Head and neck
- Health Insurance
- Healthcare
- Help
- Hematology
- Hematopoietic
- hereditary
- HLA Matching
- HNSCC
- Hormones
- Infertility
- Inheritance
- Insurance
- IVF
- Lesions
- Maladie de Fanconi
- Medicaid
- Medicare
- Mental Health
- Monitoring
- Newly diagnosed
- Nutrition
- Oral Cancer
- PALB2
- Pathway
- Peer Support
- PGD
- PGT
- Post transplant
- Private Health Insurance
- Psychological
- Psychosocial Support
- Recursos en español
- Research
- Resilience
- Resources
- Science
- Screening
- Siblings
- Skin
- Skin Cancer
- Social Security Disability Insurance
- Squamous Cell Carcinoma
- SSDI
- SSI
- Stem Cell Donor
- Stem cells
- Steroids
- Success Rates
- Sun
- Sunscreen
- Support
- Support group
- Symptoms
- Transplant
- Transplant Center
- Transplant Resources
- Trauma
- Treatment
- Tumor
- Vaccine
- Vulvar Cancer
- Waivers
- Wellbeing
- Wellness
- What is FA
The NIH Center Comprehensive Program for Surveillance of Squamous Cell Carcinoma in Patients with FA
Neelam Giri and Sharon Savage cover a brief description of the protocol to prospectively evaluate and follow patients with FA at high risk of SCC with screening at regular intervals.
FARF Clinical Programs: Virtual Tumor Board & FA Registry
FARF's Clinical Science Program Manager, Andrea Ronan, gives an overview of the FARF clinical programs, including the Fanconi Anemia Registry and Virtual Tumor Board.
Gene Therapy Clinical Trial Update 2022
Researchers give an update on the FANCA Gene Therapy Clinical Trial in the US and Spain
Eltrombopag Clinical Trial Update 2022
Dr. Andre Larochelle gives an update on the Eltrombopag clinical trial
How to Talk to Children About Fanconi anemia (subtitulado ES)
Presenters help equip caregivers with the tools to engage their children in conversation about a Fanconi anemia diagnosis