FA: Impacts of Quality of Life and Mental Health
This session discusses common mental health challenges faced by adults living with FA and recommendations for advocating for mental health needs with primary care teams.
Resource Library
- All Categories
- Acute Myeloid Leukemia
- Adults
- Allogeneic
- Anemia de Fanconi
- Anogenital
- Bone Marrow
- Bone marrow failure
- BRCA1
- BRCA2
- Breast Cancer
- BRIP1
- Cancer
- Cancer Risk
- Caregiver Resources
- Caregivers
- Case management
- Chemotherapy
- Clinical Trials
- Comprehensive Care Center
- Coping
- Counseling
- Covid-19
- Dermatology
- Diagnosis
- Diet
- Disability
- DNA
- DNA Repair
- Donor
- Endocrine
- Endocrinologist
- Endocrinology
- Esophagus
- Español
- FA Basics
- Family
- Family Planning
- FANC-A
- FANCJ
- FANCN
- FANCO
- FARF
- Fertility
- Finances
- Finances & Insurance
- Financial Support
- FMLA
- Food
- Français
- Fundraising
- Gastrointestinal
- Gene
- Genetic
- Gene Therapy
- Growth
- Growth Curve
- GvHD
- Haploidentical
- Head and neck
- Health Insurance
- Healthcare
- Help
- Hematology
- Hematopoietic
- hereditary
- HLA Matching
- HNSCC
- Hormones
- Infertility
- Inheritance
- Insurance
- IVF
- Lesions
- Maladie de Fanconi
- Medicaid
- Medicare
- Mental Health
- Monitoring
- Newly diagnosed
- Nutrition
- Oral Cancer
- PALB2
- Pathway
- Peer Support
- PGD
- PGT
- Post transplant
- Private Health Insurance
- Psychological
- Psychosocial Support
- Recursos en español
- Research
- Resilience
- Resources
- Science
- Screening
- Siblings
- Skin
- Skin Cancer
- Social Security Disability Insurance
- Squamous Cell Carcinoma
- SSDI
- SSI
- Stem Cell Donor
- Stem cells
- Steroids
- Success Rates
- Sun
- Sunscreen
- Support
- Support group
- Symptoms
- Transplant
- Transplant Center
- Transplant Resources
- Trauma
- Treatment
- Tumor
- Vaccine
- Vulvar Cancer
- Waivers
- Wellbeing
- Wellness
- What is FA
Caregivers: We See You, We Hear You, We’re Here for You
Allison Breininger (The Negative Space), Jessica Kim (Ianacare), and Kyle Woody (Jack's Caregiver Coalition) speak about resources for caregivers.
Toxic Positivity: Why It’s Okay to Not Be Okay
Megan Voss, DNP, RN, Integrative Therapy Program Director, University of Minnesota speaks about toxic positivity and consequences
Psychosocial Impacts of Living with a Rare Disease
Kathleen Bogart, PhD, Director of Disability & Social Interaction Lab, Oregon State University Presented in October 2020 as part of the Meeting for Adults with Fanconi Anemia
Taking Charge of Your Survivorship (subtitulado ES)
This talk on survivorship addresses enhancing both physical and mental wellbeing through integrative approaches, connection, and mental health support.
Cultivating Wellbeing and Resilience
Mental and emotional health plays a huge role in our wellbeing. Hear about ways to cultivate wellbeing from Dr. Megan Voss.