FARF Clinical Programs: Virtual Tumor Board & FA Registry
FARF's Clinical Science Program Manager, Andrea Ronan, gives an overview of the FARF clinical programs, including the Fanconi Anemia Registry and Virtual Tumor Board.
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- What is FA
Screening & Diagnosis of Head & Neck Cancer in Adults with FA
Patrick Ha, MD, Otolaryngology at University of California - San Francisco speaks about the screening and diagnosis of head and neck cancer in adults with Fanconi anemia.
Gynecologic Cancer & Fanconi Anemia: What You Need to Know
Dr. Katy Pennington discusses gynecologic cancer in Fanconi anemia
Oral Care & Self-Examination for Children with FA
Why oral exams are crucial to preventing cancer and how to perform them at home.
Let’s Talk About Cancer in FA
A visual overview sheet about cancer in FA: the basics and what you need to know.
Transitioning to Adult Care
As rare disease patients approach adulthood, they face the transition from parent-supervised pediatric care to more independent adult models & taking ownership of their own care