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2024 Research Updates

Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.

DNA strands

Global Fanconi Anemia Gene Therapy Program Update

The global Fanconi anemia gene therapy program will continue to be available for patients in the USA and Europe during 2018 and 2019. In Europe, a new study, known as FANCOLEN-2, will be available at CIEMAT/Hospital del Niño Jesús in Madrid,...

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New FA Research Funded

We are excited to fund four new research projects, two targeting the blood problems in Fanconi anemia, and two focusing on understanding cancer in FA. Read about each project: Investigator: Agata Smogorzewska, MD, PhDInstitution:The Rockefeller University, New York City, New YorkTitle:...

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HNSCC in FA Meeting

Identify potential prevention strategies for FA HNSCC. Clearly define potential diagnostic tests that would help inform the best treatment options that have minimal side effects and can be specifically tailored to patients. Outline conventional treatment strategies for non-FA HNSCC that...

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No Longer an Orphan

Introduction My subject was born an orphan in 1927. With no known relatives and no connections to a wider community, what followed were 60 years of abandonment. In 1985, one courageous family decided that this isolation had gone on long...

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9th Fanconi Anemia Day Raises $52,000

FA Day Brings Families Together to Make an Impact May 1 is International Fanconi Anemia Day, a day This year, 30 FA families and community members held fundraisers throughout the United States, with two in the Dominican Republic and Oman!...

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Join us at the upcoming #FCFSymposium and FA Adult Retreat September 19- 22 in Charlotte, North Carolina.
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