Hundreds of runners, walkers, volunteers, family and friends gathered in Hilton, NY for the 4th annual 5K for FA on May 5. The run/walk is held in honor of 13-year-old Eli Lana, who has FA. Each year, the event has...

This year’s slogan is #ThisIsHowIFA. Inspired by Matt Pearl, an adult with FA, #ThisIsHowIFA reflects the many people it takes to make a difference and find a cure. Matt says “FA means Find Answers. FA means Fight Always.” People with...

Sharon Schuman, long-time supporter and board member, held the 19th annual Concert and Wine benefit for the Fanconi Anemia Research Fund on April 8 in Eugene, Ore. Each year, Sharon invites different musicians to play select pieces. The concert attendees...