Sibling relationships can be the longest, strongest and at times the most complex relationships in a family. During the formative years, siblings share life’s journey and all it brings. What is it like to be the sibling of someone with...

https://www.youtube.com/watch?v=SFniw98z-n4 Dr. Agata Smogorzewska talks about her FA research project What motivates me to work on Fanconi anemia: I became interested in Fanconi anemia due to the critical function of FA proteins in DNA repair. Quite accidentally, I discovered a...

Our son is significantly smaller than his same-age peers. We know that this will become more of an issue for him socially as he gets older. Any advice? The more you accept yourself, the more others will accept you. We...

Caregiver Position Description Position Summary: The Caregiver cares for the patient’s medical, physical, emotional, spiritual, mental, social-emotional, financial, organizational, and dietary needs. Reporting to: This position reports to the patient, medical staff, the patient’s mother, other family members, friends, acquaintances, and the...