News

The FA Memorial Wall: A Space to Remember

The children and adults with FA are why we’re all here. They are the reason for the countless hours spent in the lab, the energy poured into fundraisers, the conversations we have with anyone willing to listen, and the reason...

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Collective Grief in the FA Community

As we remember all of those we’ve lost, it’s important to acknowledge the shockwave that is grief, which can reverberate throughout the entire community during times of loss. Most in this community have witnessed the difficulties experienced by those with...

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