Every summer, families affected by FA come together at Camp Sunshine in Casco, Maine for five days. The Family Retreat (or Family Camp) is a special event that allows families to hear from expert FA researchers and physicians, to attend support groups...
Announcements
1. Find your people “I went from knowing one person with FA to knowing over 40! They know exactly what it’s like to have a dozen different doctors and some kind of test every month or so. They know what...
Announcements
Do you have an idea for a research project and need funding to develop it? We want to hear about it. Introducing FARF Tank: a chance to win a $10,000 grant for your project Guidelines: Open to grad students, post-docs,...
Announcements
What are aldehydes and what do they do? Research has shown that small molecules called aldehydes cause DNA damage and increase the potential for bone marrow failure. Aldehydes are formed within our bodies (endogenous) and from sources outside our bodies...
Announcements
We asked the FA community to help design FARF’s 30th anniversary t-shirt. You all responded with some fantastic entries. We have narrowed down the submissions to six finalists, and now the voting turns to YOU. Please look at each of...
Announcements
FA families started FA Day 10 years ago to raise funds for research & family support services. We know that longer and better lives for people with FA are possible when we all get involved. #ThisIsHowIFA reflects the many people it...
Announcements
