What motivates me to work on FA: The patients and the families; that is clear for me. When I was an undergraduate student, I realized that I would like to work in genetic engineering to correct inherited disorders, but I...
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News
New approaches are needed for both prevention and treatment of squamous cell carcinoma (SCC) in patients with FA - approaches that have fewer and less severe side effects than chemotherapy and radiation therapy. The purpose of this Phase 2 study...
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Following a successful bid for an international support grant offed by FARF, Fanconi Hope in the UK and Fanconi Anemie Werkgroep of the VOKK (Dutch Parents, Children and Cancer Association), Netherlands, are setting up a new group called FA Europe. This will...
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Why gene therapy? We know that Fanconi anemia (FA) is caused by defects in any one of 23 different genes called “FANC” genes. If we could somehow repair or replace these defective FANC genes, we could treat or prevent FA...
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Do you feel content and balanced in your life? Do you live with a sense of purpose? Do you find ways to stay energized and connected to your community? Some people may answer yes to those questions, but for many,...
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Research study is open to participants worldwide to advance understanding and treatments for the rare disease Fanconi anemia, diagnosed and confirmed through a combination of clinical findings and genetic analysis Eugene, OR, September 2019 — Today the Fanconi Anemia Research Fund...
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