Win first learned of Fanconi anemia through a chance meeting with a good friend from college. At the time, this friend was at the local medical library doing research about the ultra-rare disease with which her son had just been...
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Lisa Mingo is the mother of a 16-year-old son with FA and has been part of the FA community since his diagnosis at five months old. Serving on the FCF Board of Directors since 2018, Lisa is passionate about connecting...
Joyce was a dear friend and neighbor of co-founders Lynn and David Frohnmayer; their daughters were playmates. When Kirsten Frohnmayer was diagnosed with FA, they were all devastated. Joyce, a molecular biologist, was able to help interpret information. When the...
Father of Ivan Pedro first learned about Fanconi anemia in 2001 when his then infant son Ivan was diagnosed. Over the last 20 years, Pedro and his wife Marina have connected with dozens of other FA families, participated in community...
Tracy is a longtime supporter of the Fanconi Cancer Foundation, both as a donor and as a volunteer at the annual benefit concert in Eugene, OR each spring. She has served the Eugene community by volunteering in several public schools,...
Dr. Takkenberg has been an active Fanconi anemia (FA) volunteer since 2010, after her third daughter was diagnosed with FA in 2008 and survived her stem cell transplant in 2009. She leads the Dutch FA working group and together with...