Mother of Kirsten, Mark, Katie, Jonathan and Amy Frohnmayer. All three daughters died from complications of Fanconi anemia (FA). David and Lynn Frohnmayer founded the Fanconi Anemia Family Support Group in 1985 and the Fanconi Anemia Research Fund (now the...
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Win first learned of Fanconi anemia through a chance meeting with a good friend from college. At the time, this friend was at the local medical library doing research about the ultra-rare disease with which her son had just been...
Father of Sean Kevin McQueen enjoyed a 30-year career in technology and consulting, including more than 25 years at CapTech where he served as CEO for eight years and helped grow the company from 4 people to over 1,000 consultants....
Joyce was a dear friend and neighbor of co-founders Lynn and David Frohnmayer; their daughters were playmates. When Kirsten Frohnmayer was diagnosed with FA, they were all devastated. Joyce, a molecular biologist, was able to help interpret information. When the...
Father of Ivan Pedro first learned about Fanconi anemia in 2001 when his then infant son Ivan was diagnosed. Over the last 20 years, Pedro and his wife Marina have connected with dozens of other FA families, participated in community...
Dr. Takkenberg has been an active Fanconi anemia (FA) volunteer since 2010, after her third daughter was diagnosed with FA in 2008 and survived her stem cell transplant in 2009. She leads the Dutch FA working group and together with...