Czechowicz lab at Stanford Promising research needs continued support to answer the next question. A laboratory finding may need testing in more models. A screening study may need years of follow-up. An approach ready for a clinical study needs the...
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Lisa Mingo
FA Parent | CPA, CPHR
Lisa Mingo is the mother of a 16-year-old son with FA and has been part of the FA community since his diagnosis at five months old. She served on the FCF Board of Directors from 2018-2025, including as board president for the last two years. Lisa is passionate about connecting with FA families and encouraging their involvement in the community. She is dedicated to discussing ways in which families can get involved and support each other through the challenges of living with FA.
As a Canadian CPA (Chartered Professional Accountant) and CPHR (Chartered Professional of Human Resources), Lisa has experience working across a variety of industries in the Finance, HR, IT and Project Management spaces. Presently, she owns and operates a small architectural practice with her husband. Lisa is looking forward to her continued involvement in progressing FA research as an advocate and fundraiser. She and her family have held community-based fundraisers in Vancouver since 2011.
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How can we prevent cancer in people with FA? How can treatments become safer? At the 2026 FA Scientific Symposium in Phoenix, researchers shared progress toward answering these questions, alongside work to protect blood-forming cells and better understand the broader effects of FA. Some approaches are entering clinical studies. Others are helping researchers decide which ideas deserve further testing.
More than four decades ago, Lynn Frohnmayer was a mother searching for answers after learning that three of her five children had Fanconi anemia. There was no roadmap and no established network of families or experts. Information was scarce, treatments were limited, and the future her family had been given was devastating.