Egil Dennerline is a Danish-American poet and singer-songwriter living in Denmark. Born in 1974, Egil has published four poetry collections and five albums, with more projects underway. Despite facing multiple cancer diagnoses and a bone marrow transplant, Egil remains a...
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Fatma Issak, born in Oslo, Norway, is an FA advocate and member of the FCF Adult Council. After being diagnosed with FA, she successfully underwent a stem cell transplant with her grandmother as the donor. Fatma is dedicated to volunteering...
Lexi is a passionate FA advocate, driven by her belief in the power of advocacy to drive research and progress. Diagnosed with FA at 25, Lexi found a supportive community in FCF. She aims to give back by supporting researchers,...
Lisa Mingo is the mother of a 16-year-old son with FA and has been part of the FA community since his diagnosis at five months old. Serving on the FCF Board of Directors since 2018, Lisa is passionate about connecting...
Blue is a 26-year-old nonbinary German-American with FA. They are currently attending George Washington University to pursue a Master's degree in Public Health, with a focus on Public Health Marketing and Communication, and a secondary focus in Community-Oriented Primary Care...
David is 30 years old and lives in Sydney, Australia. He was first diagnosed with Fanconi anemia in 1994 and had a successful bone marrow transplant in 2004. He has since gone on to become a qualified lawyer working for...