News

Mary Eileen Cleary

Mary Eilleen Lyon Cleary is a communications professional and former television news anchor and journalist currently working in higher education in Michigan. With four children, her youngest diagnosed with Fanconi Anemia Neuroinflammatory Syndrome (FANS), Mary Eilleen is dedicated to bringing...

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Kelly McKenna

Kelly McKenna, a single mom from Ohio, is the sole caregiver for her son, who was diagnosed with FA in 2021. Driven by her persistent advocacy for her son's diagnosis, Kelly emphasizes the importance of parents advocating for their children....

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Ana Tabar

Ana Tabar, 38, lives in New Jersey and was diagnosed with FA following her brother’s diagnosis in 1999. Inspired by her late brother, Ana and her family established “Un Corazón por Fanconi” to promote FA awareness and develop diagnostic protocols...

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Sylvia Sanyanga

Sylvia Sanyanga is a public relations professional and the Founding Trustee of The Nate Foundation, established in honor of her two children with FA. With a Master’s degree in Hospitality and Tourism, Sylvia has successfully organized fundraisers and created inclusive...

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Tricia Mitchell

Tricia Mitchell’s daughter, Emily, was diagnosed with FA at one month old. Over the past 16 years, Tricia has become a strong advocate, sharing her experiences to empower other families. She enjoys sharing her story to help other FAmilies, support...

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Stephanie Griggs

Stephanie Griggs is the mother of three adult children and the primary caretaker of her 20-year-old daughter, Bella, who has FA. After a long journey to diagnosis, Bella received a bone marrow transplant in January 2024 and has been recovering...

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Join us at the upcoming #FCFSymposium and FA Adult Retreat September 19- 22 in Charlotte, North Carolina.
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