Kelsey McQueen is a genetic counselor working for a patient advocacy organization in Virginia. Her younger brother was diagnosed with Fanconi anemia shortly after birth and has more recently developed complications related to Fanconi anemia neurological syndrome (FANS). Since his...
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Karen Natalia González is 44 years old, a surgical nurse, and a mother of three—two of whom have FA. She is motivated to share our story to raise awareness about this condition and improve access to timely diagnosis, appropriate treatments,...
María Guadalupe is a Mexican mother of two teenagers—Layla Quetzali and Itza Alejandra, the latter of whom lives with FA. María works as a preschool director in Mexico City. An empathetic woman who enjoys writing about feelings arising from everyday...
Cecilia Córdoba is the founder of GAAF (Argentine Fanconi Anemia Group) and a member of ALAPA (Argentine Patient Alliance). She is the mother and caregiver of the late Agustina Kaucic; she founded GAAF so that no family in Argentina would...
Allie M. Jones, an individual with Fanconi Anemia from Iowa, lives life to her fullest potential. She was the first person in the world with FA to survive two bone marrow transplants in 1996, later becoming the subject of a...
Maria is a business administrator with a background in pedagogy, education, and e-learning. For nearly a decade, she has taught English at a local university, where she takes pride in helping her students grow and succeed. She was diagnosed with...