Stephanie Griggs

FA Parent

Stephanie Griggs is the mother of three adult children and the primary caretaker of her 20-year-old daughter, Bella, who has FA. After a long journey to diagnosis, Bella received a bone marrow transplant in January 2024 and has been recovering since. Stephanie’s advocacy focuses on advancing FA research, supporting the transition from pediatric to adult care, and promoting awareness. She hopes for a cure within Bella’s lifetime, advocating for a future filled with optimism, confidence, and a promise of a better tomorrow for all FA fighters.

Join us at the upcoming #FCFSymposium and FA Adult Retreat September 19- 22 in Charlotte, North Carolina.
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