Ana Tabar, 38, lives in New Jersey and was diagnosed with FA following her brother’s diagnosis in 1999. Inspired by her late brother, Ana and her family established “Un Corazón por Fanconi” to promote FA awareness and develop diagnostic protocols in the Dominican Republic. A mother and graphic designer, Ana enjoys art, warm weather, the beach, and family time. She is dedicated to advocating for the FA community and supporting research efforts.