Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.
Lynn Frohnmayer (center) surrounded by FARF leadership In the Fanconi anemia (FA) community, the name “Frohnmayer” carries a legacy like no other. Lynn and David Frohnmayer founded the Fanconi Anemia Research Fund (FARF) in 1989 as a means to legally...
Stories
The Johnson Family: Rebecca, Craig, sons Brett and Michael The beginning of Michael and Brett’s Fanconi anemia journey Our journey with Fanconi anemia (FA) began February 7, 2016 – a night we remember vividly. It was the first time –...
Stories
Why cancer? When the Fanconi Anemia Research Fund (FARF) was founded in 1989, Fanconi anemia (FA) was thought to be a childhood blood disease that led to leukemia. Thanks to years of donor-funded research, we now know that faulty DNA...
Announcements
Violet (far right), with her siblings Emma, Fisher, and Tyson Hello, FAmily! My name is Paige, and my three-year-old daughter Violet was diagnosed with Fanconi anemia (FA) in 2020. Violet has three older siblings: two brothers and a sister who...
Stories
Dr. Velleuer with colleagues Mona and Christine, and Bella, who lives with FA
Uncategorized
In early 2022, four new grants were awarded to advance research in cancer preclinical models, Fanconi Anemia Neurological Syndrome (FANS), and mental health. If you’d like to submit a research grant proposal, please contact Isis Sroka, Scientific Director. If you’d like...
Announcements
