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2024 Research Updates

Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.

DNA strands

Joel Walker Scientific Meeting Series Established

Joel Walker, an adult with FA, sadly passed away from complications of head and neck cancer in November 2016, at the age of 33. In honor of their son, Joel’s parents, Nigel and Ann Walker, created the Joel Walker Scientific...

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Running for Her Life

“Despite a rare, incurable disease, Amy Frohnmayer Winn ran joyfully through her limited time on earth, making the most of every mile—and every moment.” Click here to read the full article about Amy Winn in Runners World magazine, out 6/12/2017.

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Lynn Frohnmayer: ‘Devastating news’ now life’s mission

Click to read about FARF co-founder Lynn Frohnmayer’s mission to continue fighting Fanconi anemia.

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Welcome Mark Quinlan

A Note from the Board President Dear FAmilies, scientific community, volunteers, friends and donors,Please allow me to introduce our new Executive Director, Mark Quinlan. We are excited to bring Mark on board to lead the Fund into the future. Mark...

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Knight Family Funds Five Fanconi Anemia Research Projects in First Year

Eugene, Ore.; March 22, 2017 – In December 2015, Phil and Penny Knight pledged a gift of $10 million over ten years to support the David B. Frohnmayer Scientific Research Fund, a dedicated fund under the umbrella of the Fanconi...

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Fanconi Anemia Research Fund Welcomes Four New Board Members

The Fanconi Anemia Research Fund is very pleased to welcome new members Rachel Altmann, Nancy Golden, Andre Hessels, and Bill McCorey to the Board of Directors. The Fund’s board is comprised of community leaders and long-time supporters of the organization....

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