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2025 Research Updates

Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.

19th Annual Concert & Wine Raises $22,000

Sharon Schuman, long-time supporter and board member, held the 19th annual Concert and Wine benefit for the Fanconi Anemia Research Fund on April 8 in Eugene, Ore. Each year, Sharon invites different musicians to play select pieces. The concert attendees...

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Orion Marx Joins the Board of Directors

We are pleased to welcome longtime FARF supporter and FA parent Orion Marx to the Board of Directors. Following years of experience in the economic sector, Orion founded Atlas Financial, a firm which helps clients with financial, estate and business...

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FARF Receives Grant

Eugene, Ore. – The Fanconi Anemia Research Fund (FARF) recently received a grant from the M.J. Murdock Charitable Trust of Vancouver, Washington in the amount of $255,000 to expand FARF’s development program. This grant will allow FARF to generate greater...

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Joel Walker Scientific Meeting Series Established

Joel Walker, an adult with FA, sadly passed away from complications of head and neck cancer in November 2016, at the age of 33. In honor of their son, Joel’s parents, Nigel and Ann Walker, created the Joel Walker Scientific...

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Running for Her Life

“Despite a rare, incurable disease, Amy Frohnmayer Winn ran joyfully through her limited time on earth, making the most of every mile—and every moment.” Click here to read the full article about Amy Winn in Runners World magazine, out 6/12/2017.

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