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2024 Research Updates

Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.

DNA strands

Orion Marx Joins the Board of Directors

We are pleased to welcome longtime FARF supporter and FA parent Orion Marx to the Board of Directors. Following years of experience in the economic sector, Orion founded Atlas Financial, a firm which helps clients with financial, estate and business...

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FARF Receives Grant

Eugene, Ore. – The Fanconi Anemia Research Fund (FARF) recently received a grant from the M.J. Murdock Charitable Trust of Vancouver, Washington in the amount of $255,000 to expand FARF’s development program. This grant will allow FARF to generate greater...

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Joel Walker Scientific Meeting Series Established

Joel Walker, an adult with FA, sadly passed away from complications of head and neck cancer in November 2016, at the age of 33. In honor of their son, Joel’s parents, Nigel and Ann Walker, created the Joel Walker Scientific...

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Running for Her Life

“Despite a rare, incurable disease, Amy Frohnmayer Winn ran joyfully through her limited time on earth, making the most of every mile—and every moment.” Click here to read the full article about Amy Winn in Runners World magazine, out 6/12/2017.

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Lynn Frohnmayer: ‘Devastating news’ now life’s mission

Click to read about FARF co-founder Lynn Frohnmayer’s mission to continue fighting Fanconi anemia.

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Join us at the upcoming #FCFSymposium and FA Adult Retreat September 19- 22 in Charlotte, North Carolina.
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