Do you feel content and balanced in your life? Do you live with a sense of purpose? Do you find ways to stay energized and connected to your community? Some people may answer yes to those questions, but for many,...
Announcements
Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.
Do you feel content and balanced in your life? Do you live with a sense of purpose? Do you find ways to stay energized and connected to your community? Some people may answer yes to those questions, but for many,...
Announcements
Research study is open to participants worldwide to advance understanding and treatments for the rare disease Fanconi anemia, diagnosed and confirmed through a combination of clinical findings and genetic analysis Eugene, OR, September 2019 — Today the Fanconi Anemia Research Fund...
Announcements
*The following is a press release about the recent publication on FA gene therapy in the journal Nature Medicine. This press release was provided by the Center for Energy, Environment and Technology (CIEMAT), the Center for Biomedical Network Research on...
Announcements
In late 2017, for the first time ever, there were more adults living with Fanconi anemia than children living with FA (according to FARF’s registry). This reflects an emerging population of adults living with FA that was not present even...
Announcements
FA publication spotlight In the September 2019 issue of Blood Reviews, FA researchers published a paper reviewing the literature on Fanconi anemia. We asked the authors to provide a summary. Thank you, Dr. Blanche Alter. Authors on the paper: Fiesco-Roa MO,...
Announcements
Our Mighty Mouse Well before her diagnosis of Fanconi anemia (FA), our daughter Norah was a model in resiliency for us. Born at just five pounds and three ounces, she had the strongest heartbeat on the hospital floor, surprising us...
Stories