1. Find your people “I went from knowing one person with FA to knowing over 40! They know exactly what it’s like to have a dozen different doctors and some kind of test every month or so. They know what...

Do you make resolutions for the New Year? I used to, but they wouldn’t last very long, so I found myself making new, monthly resolutions. This technique is a variation of a technique I learned in my twenties. My employer...

What are aldehydes and what do they do?  Research has shown that small molecules called aldehydes cause DNA damage and increase the potential for bone marrow failure. Aldehydes are formed within our bodies (endogenous) and from sources outside our bodies...

FA families started FA Day 10 years ago to raise funds for research & family support services. We know that longer and better lives for people with FA are possible when we all get involved. #ThisIsHowIFA reflects the many people it...