Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.
One of FARF’s guiding principles is to gather the best researchers and clinicians in the FA community every year to share updates in research and care. In late 2018, we held the 30th Fanconi Anemia Scientific Symposium in Newport Beach,...
Announcements
In 1983, Oregon parents Lynn and David Frohnmayer learned their two daughters, Kirsten and Katie, had Fanconi anemia (FA), a rare genetic disorder that leads to bone marrow failure, leukemia, and cancer. They would later find out that their third...
Stories
When FARF created guiding principles back in 1989, one was that each year, we would bring together researchers working on FA and physicians treating people with FA. They would spend three days sharing updates and concerns, brainstorming ideas and creating collaborations. In...
Announcements
My name is Mary-Beth Johnson. I’m 26 and I have Fanconi anemia. I climb mountains, make avocado roses, and I spend a lot of money at Target when I’m stressed. I don’t generally identify as someone who is sick, because...
Stories
Where were you the day your life changed forever? Do you remember how you felt the moment you knew nothing would ever be the same again? Sean, Maya, and Allison Breininger Sean was in his early 30s, married to his...
Stories
Sibling relationships can be the longest, strongest and at times the most complex relationships in a family. During the formative years, siblings share life’s journey and all it brings. What is it like to be the sibling of someone with...
Stories
