Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.
Caregivers,I see you watching your person even more closely than before, noting the way he breathes, questioning if it seems more shallow than normal.I see you reading between the lines of every article, trying to discern just how bad this...
Stories
We asked Kathy to tell us a little about what motivates her to support FARF: “My niece and goddaughter, Emily Mitchell, is an FA child. I’d like to tell you a little about her. She was born prematurely in 2008...
Stories
Oral cancer begins as a precancerous lesion. If a lesion does not heal in four weeks, FA individuals are advised to consult with an otolaryngologist (ENT physician). If the lesion appears suspicious, the physician often performs a biopsy. Could precancerous...
Announcements
To the Fanconi anemia community, I am writing to inform you that, due to the global health crisis, the Fanconi Anemia Research Fund (FARF) has made the very difficult decision to not move forward with the in-person 2020 Scientific Symposium and Meeting for...
Announcements
Piper was the first friend Bella’s age that she lost to the same disease she has. It hit us all hard when the FA community lost Piper, but it absolutely devastated a then 11-year-old Bella. To this day she cannot...
Stories
Thirty years ago, I was told that I had an incurable terminal illness called Fanconi anemia (FA). My father was alone when he received the diagnosis and was told not to tell the nurses, as the news would be too...
Stories
