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2024 Research Updates

Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.

DNA strands

2021 FARF Research Recap

In recent years, much of FARF-funded research has focused on ways to prevent and detect cancer, and to develop less toxic therapies to improve and extend lives. As the research expanded, so did our approach to addressing this critical need....

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2021 Joel Walker Cancer Ideas Lab Results in a $500,000 Grant

In November 2021,31 scientists came together for a five-day series of virtual workshops to brainstorm ideas to shift the paradigm for treating Fanconi anemia (FA) cancer. During these workshops, scientists formed interdisciplinary research teams and pitched their ideas regarding FA...

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Our Unwavering Pursuit and the Long Road to Answers

Slowly, as Levi grew, we noticed he was different than our other boys. It was tricky to tell if his sounds were happy or sad, he never slept very long, and his affect was somewhat flat. Our pediatrician recommended we...

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FARF Holds First Focus Meeting on Fanconi Anemia Neurological Syndrome

Because Fanconi anemia (FA) is a DNA repair disorder, the disease can manifest in many ways (bone marrow failure and cancer are among the top ones). There are also other manifestations of the disease that researchers don’t yet fully understand....

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Coping with Loss During the Holiday Season

For many, the holiday season is a time filled with excitement, gifts, delicious meals, and celebration, but for those who have suffered the loss of their beloved, holidays can be especially difficult. For those grieving, the holidays become a secondary...

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Scientist Spotlight: Sara Frias

What motivates me to work on FA: Patients with FA are my motivation. Knowing the importance of efficient DNA repair mechanisms makes you realize that we continuously live rescuing each one of our cells from potentially fatal injuries suffered by...

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