May 18th, 2024

A common phrase in the FA community is "I'm just waiting for the other shoe to drop." Living with this amount of uncertainty can take a toll. Join fellow FA caregiver, Allison Breininger, for a group discussion about what it's like living with the unknown and ways we can find...

Jun 21st, 2024

Join the 20th annual Coley's Cause Golf Tournament as we honor the memory of Coley, who bravely battled FA. This event supports life-saving research and support for those affected by FA. Gather your friends and colleagues for a day of golf, camaraderie, and making a difference in the lives of...

Aug 1st, 2024

We are delighted to invite you to the upcoming FA Family Retreat, taking place at The Painted Turtle from August 1-5, 2024. The Family Retreat offers a unique opportunity for families registered with us to participate in presentations by leading researchers and physicians specializing in Fanconi anemia (FA). Attendees will benefit...

Sep 19th, 2024

The Retreat for Adults with FA takes place every fall in a different city. It’s an opportunity for individuals with FA ages 18+ to meet other adults with FA, learn about medical and research updates, attend support sessions, and participate in voluntary research studies. We are excited to continue providing...

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News & Events

Breaking Ground in Cancer Research: Introducing the Fanconi Cancer Foundation-AACR NextGen Grant

That's why we're thrilled to announce the launch of the Fanconi Cancer Foundation-AACR NextGen Grant for Transformative Cancer Research, a flagship funding opportunity in partnership with the American Association for Cancer Research (AACR).

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Introducing the Fanconi Cancer Foundation: A New Era in FA Research & Impact

In 1989, Lynn and David Frohnmayer founded the Fanconi Anemia Research Fund (FARF), determined and desperate to find a cure for their three daughters diagnosed with Fanconi anemia (FA). Since then, their vision has grown into a vibrant community of FA families, researchers, clinicians, donors, fundraisers, staff, and volunteers, all dedicated to improving outcomes for people with FA.

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DNA strands

2024 Research Updates

Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.

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