Since 1991, the FA Family Retreat has been a tradition that surprises, supports, and uplifts FA families worldwide. Whether families travel from within the United States or across the globe, the retreat offers connection, educational sessions, resources, expert consultations, and...
Events
The Retreat for Adults with FA takes place every fall in a different city. It’s an opportunity for individuals with FA ages 18+ to meet other adults with FA, learn about medical and research updates, attend support sessions, and participate in voluntary research studies. We are excited to continue providing...
Join FA families from the Richmond, Virginia area for a fun day out on the course! Tee off with purpose as we drive towards a world where FA and related cancers are no longer a threat. Your participation not only promises a day of fun on the green but also...
In the FA community, we may experience grief at the loss of members of our FAmily, grief about parts of our lives that are different than we expected, and anticipatory grief about the losses we predict may occur. Join fellow FA caregiver, Allison Breininger, for a group discussion about how...
The 2025 Scientific Symposium will be held in Minneapolis, Minnesota from September 25-28. We hope to see you there! What is the Symposium? The Scientific Symposium serves as a vital platform for the exchange of knowledge and ideas in the field of Fanconi anemia (FA). Every year, the Fanconi Cancer...
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Katherine (middle) with 2023's recipient Ana Tabar (left) and FCF CEO Isis Sroka (right) The De Los Santos family first experienced the complexities of Fanconi anemia as they endured the devastating loss of their daughter, Gracie, who passed away from...
It took me weeks to come to terms with the fact that there were no easy answers. I couldn't change the past or the diagnosis, so I focused on educating myself and becoming Tinslee's biggest advocate. We underwent all the necessary tests, scans, and procedures, and spent a year going in for lab work and check-ups.