Following a successful bid for an international support grant offed by FARF, Fanconi Hope in the UK and Fanconi Anemie Werkgroep of the VOKK (Dutch Parents, Children and Cancer Association), Netherlands, are setting up a new group called FA Europe. This will...
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Why gene therapy? We know that Fanconi anemia (FA) is caused by defects in any one of 23 different genes called “FANC” genes. If we could somehow repair or replace these defective FANC genes, we could treat or prevent FA...
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Do you feel content and balanced in your life? Do you live with a sense of purpose? Do you find ways to stay energized and connected to your community? Some people may answer yes to those questions, but for many,...
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Research study is open to participants worldwide to advance understanding and treatments for the rare disease Fanconi anemia, diagnosed and confirmed through a combination of clinical findings and genetic analysis Eugene, OR, September 2019 — Today the Fanconi Anemia Research Fund...
Announcements
*The following is a press release about the recent publication on FA gene therapy in the journal Nature Medicine. This press release was provided by the Center for Energy, Environment and Technology (CIEMAT), the Center for Biomedical Network Research on...
Announcements
In late 2017, for the first time ever, there were more adults living with Fanconi anemia than children living with FA (according to FARF’s registry). This reflects an emerging population of adults living with FA that was not present even...
Announcements
