News

Will Bloxom

Will is a 30-year-old from Salisbury, Maryland, where he works remotely in data operations management. He was diagnosed with Fanconi anemia in 1997 at age 5 and was transplanted in 2020 during the height of the COVID pandemic at Sloan...

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Evan Connelly

Evan is 22 years old and holds a bachelor's degree in Chemical and Biomolecular Engineering from the Milwaukee School of Engineering. He has five sisters, one of whom also has Fanconi anemia. He was diagnosed at six weeks old and...

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Louise Dalgleish

Louise is a 22-year-old British photographer who was diagnosed with FA at age six. She works as a freelance photographer as well as market worker, drag king and nightclub safeguard. Experimenting mainly with documentary photography, she is interested in the...

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Egil Dennerline

Egil Dennerline is a 49-year-old Danish-American poet and singer/songwriter who lives with FA. Since his first cancer in 2011 (he has been diagnosed 11 times, as of 2023), Egil has been invited to share his FA story through various media...

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Fatma Issak

Fatma was born in Oslo, Norway. At the time, doctors were unaware of her condition. Only five years later did they understand she was facing major health complications. Due to insufficient medical knowledge in her home town, Fatma's family traveled...

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Andie Kalemba

Andie Kalemba is a 19-year-old college student at Butler University. From St. Johns, Indiana, she was diagnosed with Fanconi anemia at 8-months-old and received a bone marrow transplant at age five at Cincinnati Children's Hospital. She works on her campus...

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