Will is a 30-year-old from Salisbury, Maryland, where he works remotely in data operations management. He was diagnosed with Fanconi anemia in 1997 at age 5 and was transplanted in 2020 during the height of the COVID pandemic at Sloan...
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Evan Connelly, 22, is an individual with FA and a member of the FCF Adult Council. He holds a bachelor’s degree in Chemical and Biomolecular Engineering from the Milwaukee School of Engineering. With five sisters, one of whom also has...
Louise is a 23-year-old British photographer who was diagnosed with FA at age six and is now 11 years post-transplant. She works as a freelance photographer as well as market worker, drag king and nightclub safeguard. Louise strives to shift...
Egil Dennerline is a Danish-American poet and singer-songwriter living in Denmark. Born in 1974, Egil has published four poetry collections and five albums, with more projects underway. Despite facing multiple cancer diagnoses and a bone marrow transplant, Egil remains a...
Fatma Issak, born in Oslo, Norway, is an FA advocate and member of the FCF Adult Council. After being diagnosed with FA, she successfully underwent a stem cell transplant with her grandmother as the donor. Fatma is dedicated to volunteering...
Andie Kalemba is a 19-year-old college student at Butler University. From St. Johns, Indiana, she was diagnosed with Fanconi anemia at 8-months-old and received a bone marrow transplant at age five at Cincinnati Children's Hospital. She works on her campus...