Maria, a 37-year-old mother from Colombia, is a business administrator with a background in pedagogy, education, and e-learning. For nearly a decade, she has taught English at a local university, where she takes pride in helping her students grow and...
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Anne was diagnosed with FA at age 20 while serving as a cadet at the Air Force Academy. When she began to struggle with the physical demands of her training, further testing revealed dangerous mutations in her bone marrow, leading...
Evan Connelly, 22, is an individual with FA and a member of the FCF Adult Council. He holds a bachelor’s degree in Chemical and Biomolecular Engineering from the Milwaukee School of Engineering. With five sisters, one of whom also has...
Louise is a 23-year-old British photographer who was diagnosed with FA at age six and is now 11 years post-transplant. She works as a freelance photographer as well as market worker, drag king and nightclub safeguard. Louise strives to shift...
Egil Dennerline is a Danish-American poet and singer-songwriter living in Denmark. Born in 1974, Egil has published four poetry collections and five albums, with more projects underway. Despite facing multiple cancer diagnoses and a bone marrow transplant, Egil remains a...
Lexi is a passionate FA advocate, driven by her belief in the power of advocacy to drive research and progress. Diagnosed with FA at 25, Lexi found a supportive community in FCF. She aims to give back by supporting researchers,...