Brian, age 37, lives in sunny Florida with his wife, son, and their yellow lab, Molly. His motto has always been to live life to the fullest, even when facing the unknowns of medical procedures, and believes that positivity is...
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As a council member, Fatma is committed to ensuring individuals with FA feel genuinely heard and supported. She hopes to create space where every person feels empowered to share their experiences, knowing their voices matter. Fatma’s experiences with transplant and...
Faith lives in New York with her husband and five cats. She was diagnosed with Fanconi anemia at 43 after previously facing leukemia, breast cancer, oral cancer, and colon cancer. She is currently living with liver cancer, which is being...
Emily, 27, holds a Bachelor of Science degree in Behavioral Sciences from the University of Delaware and currently serves as a Human Resources Director for a pediatric occupational and physical therapy company. Diagnosed with Fanconi anemia at age 20, Emily...
Maria, a 37-year-old mother from Colombia, is a business administrator with a background in pedagogy, education, and e-learning. For nearly a decade, she has taught English at a local university, where she takes pride in helping her students grow and...
Anne was diagnosed with FA at age 20 while serving as a cadet at the Air Force Academy. When she began to struggle with the physical demands of her training, further testing revealed dangerous mutations in her bone marrow, leading...