Chris and his wife, Melanie, joined the FA community in 2020 when their then-4-year-old son, Elliott, was diagnosed with Fanconi anemia. They live in Alexandria, Virginia, with Elliott and his younger brother, Emmett. Professionally, Chris has spent his career in...
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Adam and his wife Marissa joined the Fanconi anemia "FAmily" in 2015, when their then-four year old son, Zachary, was diagnosed with FA. Adam and Marissa live in Brooklyn, NY with Zach, his older brother Ben, and their furry feline...
Will is a 30-year-old from Salisbury, Maryland, where he works remotely in data operations management. He was diagnosed with Fanconi anemia in 1997 at age 5 and was transplanted in 2020 during the height of the COVID pandemic at Sloan...
Dr. Bonfim oversees the Pediatric Stem Cell Transplant Program at the Federal University of Paraná in Brazil. She brings to the board of directors years of experience treating FA patients in Brazil, specializing in stem cell transplants. In addition to...
Mother of Kirsten, Mark, Katie, Jonathan and Amy Frohnmayer. All three daughters died from complications of Fanconi anemia (FA). David and Lynn Frohnmayer founded the Fanconi Anemia Family Support Group in 1985 and the Fanconi Anemia Research Fund (now the...
Win first learned of Fanconi anemia through a chance meeting with a good friend from college. At the time, this friend was at the local medical library doing research about the ultra-rare disease with which her son had just been...