Join FA families from the Richmond, Virginia area for a fun day out on the course! Tee off with purpose as we drive towards a world where FA and related cancers are no longer a threat. Your participation not only promises a day of fun...

In the FA community, we may experience grief at the loss of members of our FAmily, grief about parts of our lives that are different than we expected, and anticipatory grief about the losses we predict may occur. Join fellow FA caregiver, Allison Breininger, for...

The Retreat for Adults with FA takes place every fall in a different city. It’s an opportunity for individuals with FA ages 18+ to meet other adults with FA, learn about medical and research updates, attend support sessions, and participate in voluntary research studies. We...

We are delighted to invite you to the upcoming FA Family Retreat, taking place at The Painted Turtle from August 1-5, 2024. The Family Retreat offers a unique opportunity for families registered with us to participate in presentations by leading researchers and physicians specializing in Fanconi...

Join the 20th annual Coley's Cause Golf Tournament as we honor the memory of Coley, who bravely battled FA. This event supports life-saving research and support for those affected by FA. Gather your friends and colleagues for a day of golf, camaraderie, and making a...