In 1989, Lynn and David Frohnmayer founded the Fanconi Anemia Research Fund (FARF), determined and desperate to find a cure for their three daughters diagnosed with Fanconi anemia (FA). Since then, their vision has grown into a vibrant community of FA families, researchers, clinicians, donors, fundraisers, staff, and volunteers, all dedicated to improving outcomes for people with FA.

My name is Blue Mohr and I’m a 27-year-old living with Fanconi anemia (FA). I’m from Austin, Texas, though I am currently living in Washington, D.C. where I’m pursuing a Master of Public Health degree from the George Washington University with concentrations in epidemiology, cancer, and public health communication and marketing. 

When our son Blake was diagnosed with Fanconi anemia in 2013, our world instantly changed. He was two years old and we didn’t have many medical concerns. Never in a million years would we have predicted all that Blake and our family would go through.

There’s nothing quite like the fierce determination of parents who have a child affected by Fanconi anemia. Our founders had three daughters with FA and to this day, the majority of our funding comes from FA family communities. One such family community from Colorado has been working on this cause for nearly 20 years and has raised an outstanding $3.1 million for FA research.