Events

Retreat for Adults with FA

Sep 25th, 2025, 03:00 PM - Sep 28th, 2025, 12:00 PM

The Retreat for Adults with FA takes place every fall in a different city. It’s an opportunity for individuals with FA ages 18+ to meet other adults with FA, learn about medical and research updates, attend support sessions, and participate in voluntary research studies. We are excited to continue providing education and support sessions for caregivers.

This retreat is held in conjunction with our annual Scientific Symposium. Attendees from both meetings share meals together, including the annual banquet dinner. Adult Retreat attendees are welcome to attend Symposium sessions as well.

Event: Meetings

Retreat for Adults with FA

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Living with Faith and Possibility

For our family, living with FA means living with faith. We see Liam as a normal, healthy child who continues to grow and surprise us. At the same time, we know there are real challenges.

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