Living with FA as an adult One way I describe my life living with FA is this: it’s like being picked last for a sport or a group project. It’s that feeling of dread and anxiety and hurt. It’s annoyance...

Stephanie, Brandon, and Raymond The early years Hi, my name is Stephanie and my 13-year-old son, Brandon, was diagnosed with Fanconi anemia (FA) at age four. After learning more about the signs and symptoms of FA, we knew Brandon had...

In 2022, the Fanconi Anemia Research Fund moved full steam ahead with research priorities. Notably, we invested over $3 million into new and ongoing research efforts, with a major focus on cancer through the development of the FA Cancer Consortium....

FARF continues to grow the support we provide caregivers, including in how to return to in-person events. During the recent Retreat for Adults with FA, one of the ways we sought to help caregivers feel seen and important was through partnering...