Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.
Enroll in study The National Cancer Institute (NCI) investigators Dr. Neelam Giri and Dr. Sharon Savage have teamed up with the Fanconi Anemia Research Fund (FARF) as part of the FA Cancer Consortium to develop a comprehensive program to screen...
Announcements
As we remember all of those we’ve lost, it’s important to acknowledge the shockwave that is grief, which can reverberate throughout the entire community during times of loss. Most in this community have witnessed the difficulties experienced by those with...
Announcements, Wellness, Grief
Naomi with her brother and cell donor It’s just a stomach virus… June 2021 was a turning point for our family that we never saw coming. Naomi had just turned seven years old. She was struggling with stomach issues for...
Stories
Living with FA as an adult One way I describe my life living with FA is this: it’s like being picked last for a sport or a group project. It’s that feeling of dread and anxiety and hurt. It’s annoyance...
Stories
Name: Sharon A. Savage, MD Institution: Clinical Genetics Branch, Division of Cancer Epidemiology and Genetics, National Cancer Institute, National Institutes of Health, Bethesda, MD, USA. Area of expertise: Pediatric hematology-oncology, genetics, cancer predisposition syndromes, inherited bone marrow failure syndromes My work: ...
Stories
Stephanie, Brandon, and Raymond The early years Hi, my name is Stephanie and my 13-year-old son, Brandon, was diagnosed with Fanconi anemia (FA) at age four. After learning more about the signs and symptoms of FA, we knew Brandon had...
Stories
